One of the many great things about working with such a diverse group of customers is the opportunity to meet people who educate us.
Ryan’s Challenge is one of those customers. Ryan’s Challenge is a local non-profit with a mission to raise awareness and fund research for the cure of vascular Ehlers-Danlos Syndrome (vEDS). vEDS is one of 13 classifications of a certain type of connective tissue disorder.
“We are a family deeply concerned with the welfare and life of our little boy Ryan. We are fighters so we can’t sit on the sidelines and wait for something to happen. We had to get in the fight. We are determined to help find a cure, a cure is the only way to end the suffering of the families dealing with vascular Ehlers-Danlos Syndrome.”
Ryan’s Challenge has only been working with us a short six months, but in that time we have been able to see Ryan and his family on many occasions. Each of those times we have been met with smiles, laughter, and a spirit that brightens the room.
For more information on Ryan’s Challenge, vEDS, and the different ways you can help, please visit: Ryan’s Challenge